Mark Your Calendar for May 13th!

Dr. Wes Sheppard

MCVH and Dawn Potts, BCSI

Topic: BRONCHIAL THERMOPLASTY For Asthmatics

Refreshments provided by
American Home Patient

Time: 1:20 – 3:00 p.m.

Kraus Auditorium
Chippenham Medical Center
7101 Jahnke Road
Richmond, VA 23225

Set the Date for June 10, 2013

Lucy Kessee
Horizons Hospice

Topic: Hospice…
It’s Not What you Think

Kraus Auditorium
Chippenham Medical Center
7101 Jahnke Road
Richmond, VA 23225

You're Invited!

DAVID
SANDERS

David was a Board Member for Breath Matters.

Obituary Notice

READ MORE

READ MORE ABOUT THIS

WHY WE NEED YOU TO CONTACT YOUR CONGRESSPERSON

PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.

THE GOAL

PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.

THANK YOU TO FASTCAP

MXV Pocket Dust Mask

FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!

MORE INFO AT fastcap.com

Benefits of Joining A Support Group

With an illness like Lung Disease, often a feeling of hopelessness and loss of control becomes the norm. With a support group, participants are able to regain that sense of control and exercise authority toward management of their situation.

Support groups can be instrumental in improving psychological motivation. By simply getting "out of the house" and joining with other people with an understanding of the problems being faced, a positive attitude can be nurtured and improved.

WHO CAN JOIN

Any individual that is lung affected can become a member. However, recognizing that it is not only the individual with the lung disease that needs support we encourage the caregivers or “care partners” and other family to join and attend the meetings. Learning and receiving support together helps to equalize the disease experience for all who are involved.

NEW ARTICLE!

Surviving Mesothelioma

Read Online

BLOODWORK IN YOUR HOME!

MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!

See a youtube online video that discusses Medalabs in the Richmond area.

Resource links

1. Alpha-1 Foundation
2. American Academy of Allergy Asthma & Immunology (AAAAI)
3. American College of Allergy, Asthma & Immunology
4. COPD Foundation
5. COPD.org
6. Cystic Fibrosis Research Foundation
7. Drive 4 COPD
8. National Home Oxygen Patients Association
9. The LAM Foundation - Lymphangiomyomatosis - research and support
10. National Heart, Lung, and Blood Institute
11. National Jewish Medical and Research Center
12. National Emphysema COPD Association NECA
13. Pulmonary Hypertension Association
14. Pulmonary Fibrosis Foundation
15. The Pulmonary Paper
16. Society of Thoracic Surgeons
17. Surgeon General's Tobacco Cessation Guideline
18. Sarcoidosis Resources
19. www.ipftoday.com
20. www.coalitionforpf.org
21. www.huff-n-puff.net
22. www.ipfnet.org
23. www.ASCENDTrial.com
24. www.thoraic.org PDF
25. Pulmonary Fibrosis Friends Yahoo Group

More links being organized, if you have suggestions of good, quality information sources, please send it to us.

HELP US!

Do you know of a currently operating pulmonary support group? We are compiling a list for this website: if you know of one, let us know. Thanks.

LATEST LUNG NEWS

BLOG!

READ NOW

Questions?

Call the Facilitator!

Russell Glover
(804) 378.0628
russellglover@
verizon.net

New Videos Online!

Recorded at the Monthly meetings

IPF legislation with Paul Fogelberg

Lung Transplant Evaluation - Heidi Flanagan

Asthma and COPD - Dr Kevin Cooper

IPF - Dr. Paul Fairman, Between a Rock and a Hard Place

Acid Reflux and its Relationship to Lung Disease

Click to view online.

For seniors and adults with disabilities and the providers that support them

TRANSPORTATION FINANCIAL
HOUSING

Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.

Website: Virginia Easy Access

Stop Smoking Today Online!

Contact Susan J. Keen,
RN, OCN at
CJW Med Center

email: Susan.Keen [at] hcahealthcare.com