CANCELLED MEETING DEC 10 2018

Donate Call For Help Donate
Donation memorials
A Dedication to Resourceful Living: A group approach to focus on what matters to the members of our community whose lives are impacted by chronic lung disease.

Breath Matters Virginia Lung Support Group

Facebook Breath Matters YOU TUBE BREATHMATTERS Twitter Breathmatters Pinterest Breathmatters TUmblr Breath Matters VIrginia


Inhaler Training - Click to View

Amazon Smiles Logo

Help Breathmatters with Amazon


 

CANCELLED DUE TO HEAVY SNOW!

• • •

Next Meeting: December 10, 2018

ANNUAL HOLIDAY PARTY

STALKER AUDITORIUM

Johnston - Willis Hospital
1:15 PM to 3:00 PM

VALET PARKING PROVIDED AT NO CHARGE

DOOR PRIZES

You're Invited! Refreshments Provided!


Past Meeting: November 12, 2018

Megan R Clayton Richmond Virginia

SPEAKER:

Megan R. Clayton

BSRT, RRT-ACCS, RPFT

TITLE:

Respiratory Therapy

Megan R Clayton and Lung Capacity in Richmond Virginia

Megan Clayton spoke on how changes occur in the body from a lack of proper breathing and that this affects posture, muscles and even creates skeletal changes if not corrected. Respiratory therapy addresses these issues and emphasizes the importance of exercise for improvement or maintenance of breathing capacity. While on this topic Megan spoke about the variety of inhalers that are available, the pros and cons of actuators, dry-powder inhalers and spray inhalers. She also spoke on the coming use of soft mist inhalers. A variety of related topics were covered during the question and answer period of the presentation.

A video of the recorded event will be online shortly.


BLF is Christina Hunt's blog for pulmonary patients. Christina is a pulmonary therapist at Chippenham Pulmonary Rehab who works with Kris Beshada, both have been speakers at past Breathmatters meetings.

Breathe Fit Logo

A Blog Devoted to People with Lung Conditions

This site was designed to help people with lung conditions live their best life. After a chronic lung diagnosis, you probably have lots of questions about your ability to manage your lung condition and live a quality, fulfilling life. BreatheLiveFit is here to support and encourage you to enjoy life at its fullest and manage your condition from day to day. The advice and support offered on this site comes from knowledgeable therapists in the respiratory field as well as pulmonary rehabilitation patients that show us each and every day that life is what you make it! You can find information on this site to help you on your journey of managing your chronic lung condition. Subscribe to our site and receive emails when new information is added. We want you to gain confidence, manage your breathlessness, get fit and live life to its fullest!

https://www.facebook.com/breathelivefit/

Christina Hunts


From the October Meeting

At the October meeting speakers Mandy Herbert and Karen Middlebrooks gave a presentation on patient financial assistance and in particular the services of PSI Patient Services Inc. Below is more information on PSI and a link to their website.

Patient Services Inc

The founder of PSI shaped the very first non-profit patient assistance model in 1989 and knows the pain firsthand of watching a loved one fight-and-lose their battle against chronic illness; he knows, too, the crippling financial burden often carried by those left behind. Since our inception in 1989, Patient Services has been a pioneer leading the charge to find solutions to the challenges that face the chronically ill in the United States. We provide financial support and guidance for qualified patients with specific, rare chronic diseases. Through PSI assistance programs patients and their families rediscover hope and health.

https://www.patientservicesinc.org


Past Meeting: October 8, 2018

SPEAKER:

Mandy Herbert, MBA
AND
Karen Middlebrooks

TITLE:

Advocacy for greater access to affordable health care

Mandy Herbertmeeting Breathmatters OctoberKaren MiddlebrooksMeeting at Breathmatters

About the October Speakers:

Mandy Herbert, MBA

Director of Community Outreach

Mandy Herbert, MBA

Mandy Herbert was drawn to PSI in 2005 and has always had an increased personal interest for helping people with chronic illnesses. Since 2005, Mandy has contributed to the continued success of biologics and select oncology programs, led numerous funding campaigns, secured features in local and major national media outlets, aided in program development, and in fundraising efforts. Mandy received her BA in English with a minor in Psychology from High Point University in 2005, a Certificate in Non-Profit Management and Leadership from Virginia Commonwealth University in 2008, and her MBA in Management and Strategy from Western Governors University in 2015. She currently resides in VA with her husband and their children (their son has mild hemophilia A). Aside from work , Mandy enjoys date nights with her husband, playing with her children, working out, trips to the beach, and spending time with family and close friends.

Karen

Karen Middlebrooks

Director of Donor

Relations and Program Management

Karen began her career with PSI in 2004 as a Patient Services Representative (PSR) in the Operations Intake department and transitioned into a maintenance role servicing patients with their medication and health insurance premiums. In 2005, Karen transferred to the accounting department as a Bookkeeper, allowing her to learn an overall view of PSI’s services. She assisted with specific tasks including, accounts payable & receivable, reconciling of bank statements, and processing payments to PSI patients. She was promoted to Program Manager of PSI’s Enzyme Deficiency programs in December 2006 and managed the Intake department, which services more than 25 PSI financial assistance programs. In October 2011, Karen joined the Program Development Team as the Program Development and Maintenance Analyst. She currently holds the position of Director of Donor Relations and Program Management, developing and overseeing the success of patient assistance programs at PSI. Karen enjoys time with her two sons and spends the summer months relaxing at the beach and riding the Harley with her husband.

 


Past Meeting: Sept. 10, 2018

SPEAKER:

Mary Hodges RN, BSN, MSN

TITLE:

Pulmonary Fibrosis


PAST MEETING: Aug 13, 2018

SPEAKER:

Dr. Susan Scharpf

TITLE:

Health and Wellness


PAST MEETING: July 8, 2018

SPEAKER:

Melanie Dalton

TITLE:

What your case manager can do for you?


PAST MEETING: June 11, 2018

Chris McKenney PA-C

SPEAKER:

Chris McKenney PA-C

TITLE:

New Therapies for 2018

RECORDED AT STALKER AUDITORIUM


JULY MEETING: July 9, 2018

Johnston - Willis Hospital
1:15 PM to 3:00 PM

SPEAKER:

Melanie Dalton

TITLE:

What your case manager can do for you?


PAST MEETING: May 14, 2018

Lisa Hazelgrove - Breathmatters

Johnston - Willis Hospital
1:15 PM to 3:00 PM

SPEAKER:

Lisa Hazelgrove

TITLE:

Releasing the Emotional Energy of Fear

Lisa Hazelgrove - May 2018 - Richmond Virginia


Past Meeting - April 9, 2018


DOOR PRIZES! REFRESHMENTS!

Speaker:

Janet Pinson, NP

Topic:

All About Inhalers

FOCUS GROUP - HELP BREATH MATTERS
DONATE NOW

BLOODWORK IN YOUR HOME!

MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!

See a youtube online video that discusses Medalabs in the Richmond area.

THANK YOU TO FASTCAP

Pocket Mask

MXV Pocket Dust Mask

FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!

MORE INFO AT fastcap.com

Finding Hope in Hospice

Pulmonary Fibrosis Study

IPF WORLD WEEK

LEARN MORE AT
THE IPF WEBSITE

ipfworld.org

SUBSCRIBE TO OUR FREE NEWSLETTER! EMAIL SIGNUP

You Tube Videos Breathmatters Meetings

Using an Inhaler Online Video

WHY WE NEED YOU TO CONTACT YOUR CONGRESSPERSON

PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.

THE GOAL

PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.

WRITE CONGRESS

Virginia Easy Access

For seniors and adults with disabilities and the providers that support them

TRANSPORTATION FINANCIAL
HOUSING

Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.

Website: Virginia Easy Access

Questions?

804.937.6855


HOME | VIDEO | 501 (c) (3) | MEMORIALS | DONATE | ARCHIVES | SITE MAP | CONTACT

Contact Breath Matters

804.937-6855

Site by
Erik Weems