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A Dedication to Resourceful Living: A group approach to focus on what matters to the members of our community whose lives are impacted by chronic lung disease.

Breath Matters Virginia Lung Support Group

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FEBRUARY 10, 2014

Pulmonary Fibrosis
Advocacy and Research

with speaker

Patti Tuomey

President and Chief Operating Officer
Pulmonary Fibrosis Foundation


Free Valet Parking

1:15 to 3:00 PM

Come Early! Refreshments provided!

Kraus Auditorium
Chippenham Medical Center
7101 Jahnke Road
Richmond, VA 23225

You're Invited!

Directions and Map

MAP and DIRECTIONS

ALL BREATHMATTERS MEETINGS ARE FREE AND ARE OPEN TO THE PUBLIC


MEETING SPONSORED BY

ALWAYS BEST CARE - RICHMOND SOUTH

Office 804.912.5688

Fax 804.447.1239

Cell 804.920.9190

Always Best Care

Always Best Care Web Site


THE JANUARY 2014 MEETING

The January 2014 Meeting with Heather Umberger was well attended with an enthusiastic group. Everyone participated in the class on "laughter yoga" and listened to a short lecture on how laughter as an exercise is particularly potent for improving breath and health. Heather Umberger taught breathing exercises linked with laughter and discussed medical research on the good effects of laughter on the human body.

Breath Matters January 2014 Meeting Photo 1

Breath Matters January 2014 Meeting Photo 2

Breath Matters January 2014 Meeting Photo 3

Breath Matters January 2014 Meeting Photo 4

Breath Matters January 2014 Meeting Photo 5

Breath Matters January 2014 Meeting Photo 6

Breath Matters January 2014 Meeting Photo 7

Thanks to all who came out and a special thanks to Heather Umberger.



Action Changes ThingsPulmonary Fibrosis Study

The Participation Program for Pulmonary Fibrosis (P3F) are currently recruiting pulmonary fibrosis patients (fibrosis of any etiology, not just IPF) to sign up for a Contact Registry as well as for a study in which we will examine the effects of daytime supplemental oxygen on a number of outcomes.

For our supplemental oxygen study, we are looking to enroll patients currently using supplemental oxygen and those likely to need supplemental oxygen in the next year or so.

We are asking for your help only to spread the word about this study to all the members of your support group. All data collection will occur either online or via mailings.

Packets containing a more detailed explanation of the study along with recruitment materials (e.g., flyers, business cards) are being mailed to you and should reach you in a few days.

We appreciate your time and attention, and we hope that you can help us by letting the members of your pulmonary fibrosis support network know about these exciting opportunities.

If you would like more information about the P3F, please check us out at www.PFresearch.org and follow us on Twitter at @DoctorSwig or email our Principal Investigator, Dr. Swigris, directly at swigrisj@njc.org.

P P P P F Study


NEW! ONLINE VIDEO FROM THE SEPT MEETING

Pulmonary Fibrosis and its stages

In this video recording of the Sept meeting, Dr. Dan Grinnan talks about Idiopathic Pulmonary Fibrosis, what this ailment is and the challenges in treating it.

This presentation features Dr. Grinnan discussing causes, the difficulties in diagnosis, and the varieties of treatment. A question and answer period is included at the end of the talk (part 6).

Video recorded September 9, 2013, at Kraus Auditorium at the Chippenham Medical Center, Richmond, VA 23225

Entire video is also online at the youtube.com Breathmatters site (along with 58 other videos from other Breath Matters events)


Donor Obituary: Hampton H. Rasnick

Hampton Hobert Rasnick, 82, of Chester, passed away on Wednesday, Sept. 4, 2013. He was the son of the late Hobert and Milly Stanley Rasnick. He was also preceded in death by: three brothers and two sisters. Mr. Rasnick served his country proudly in the Navy on the USS Coral Sea.

...His family will receive friends from 6 to 8 p.m. on Friday, Sept. 6, 2013, at the Hopewell Chapel of J.T. Morriss & Son Funeral Home and Cremation Service. Interment will be private.

In lieu of flowers, memorial contributions may be made to Breath Matters,
c/o Russell Glover, President,
11520 Edenberry Drive,
Richmond, VA
23236-4030

Or on line at www.breathmatters.org.

Condolences may be registered at www.jtmorriss.com.

Read the full obituary at The Progress-Index


AMAZING RAISE UPDATE

About the RAISE. We want to thank Mary Morgan and especially Don Bane for all their work putting this together.

The RAISE…we had 79 donors totaling $4977.87 netting $4646.14. Also, because of the RAISE letters and postcards, an additional $590.00 was generated from 4 other donors.

That money was NOT counted in the RAISE because it was mailed to us.

So the total generated was 5477.87 netting 5136.14.


Latest Blog Posts from Breathmatters


Jun 20

Individuals who have an idea for improving COPD healthcare

WASHINGTON – The COPD Foundation (COPDF) announced that it has partnered with Edison Nation Medical, an online resource for individuals who have an idea for improving healthcare but lack the knowledge or resources to make that idea a reality, to find … Continue reading

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Feb 27

March 12, 2013 – COPD Advocacy Day

Once again, The COPD Foundation will partner with the American Association for Respiratory Care (AARC) for their annual Advocacy Day on Capitol Hill on March 12th. This advocacy day is a great opportunity to stand up for the COPD community, speak … Continue reading

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Feb 27

Difficulties Receiving Oxygen?

Are you experiencing any difficulty receiving liquid oxygen or concentrators? If you are, it’s important to let the COPD Foundation know. Call the C.O.P.D. Information Line to share your stories. They will continue to work with policymakers and suppliers to make … Continue reading

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Feb 7

Respite Voucher Program

Virginia residents who take care of disabled or chronically ill family members can apply for $400 to cover the costs of having someone stay with their loved ones while the caregivers take a break. A total of $179,079 is available … Continue reading

Read More...

Questions? Call the Facilitator, Russell Glover (804) 378.0628. Donation in Memoriam page


OUR SPONSORS

Chippemham Hospital of CJW is our largest supporter

Lincare, Rachele Clement, Representative

Louisa Home Care, Roger Householder, Representative

Roberts Home Medical, Jo Lynn Hamelman Supervisor


THANK YOU TO FASTCAP

Pocket Mask

MXV Pocket Dust Mask

FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!

MORE INFO AT fastcap.com

DAVID
SANDERS

David was a Board Member for Breath Matters.

Obituary Notice

READ MORE

BLOODWORK IN YOUR HOME!

MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!

See a youtube online video that discusses Medalabs in the Richmond area.

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Amazing Raise

You Tube Videos Breathmatters Meetings

Using an Inhaler Online Video

IPF WORLD WEEK

LEARN MORE AT
THE IPF WEBSITE

ipfworld.org

Finding Hope in Hospice

WHY WE NEED YOU TO CONTACT YOUR CONGRESSPERSON

PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.

THE GOAL

PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.

WRITE CONGRESS

Virginia Easy Access

For seniors and adults with disabilities and the providers that support them

TRANSPORTATION FINANCIAL
HOUSING

Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.

Website: Virginia Easy Access

Questions?

Call the Facilitator!

Russell Glover
(804) 378.0628
russellglover@
verizon.net

Stop Smoking Today Online!

Contact Susan J. Keen,
RN, OCN at
CJW Med Center

email: Susan.Keen [at] hcahealthcare.com

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OUR SPONSORS

Chippenham Hospital of CJW is our largest supporter

Lincare, Rachele Clement, Representative


Contact Breath Matters

Breath Matters - C/o Russell Glover, President - 11520 Edenberry Drive - Richmond, VA 23236-4030
804.378.0628

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